Funding

The Rare Experience 2020 project has been funded (under the name Patient Experience Report) through a collaboration agreement with Alexion. As part of this agreement Alexion have a non-exclusive licence to use aggregated data from the findings of this work.

The robertd245.sg-host.com microsite has been funded by Alexion through a sponsorship agreement.

These arrangements are in accordance with Genetic Alliance UK’s Working with Industry Policy and Ethical Collaboration Policy.